For 20-year-old Daniel, who has alpha 1 anti-trypsin deficiency, music has always been a huge part of his life. Now his dream of a career in the music industry is getting close to reality.
Alpha-1 antitrypsin deficiency is a genetic condition that can cause lung and liver damage with symptoms usually similar to emphysema, including chronic cough, shortness of breath and wheezing.
Daniel, who was born here on the Isle of Wight, was diagnosed with Alpha 1 when he was just a few weeks old with his parents Keith and Elaine unsure as to whether their son was going to live or die.
The family made frequent visits to King College Hospital in London throughout Daniel’s childhood as they looked to balance normal life and his ongoing complex medical needs.
From an early age, it was clear to his parents that Daniel was into music and as he grew up he focused on playing the guitar and writing his own music. He continues to do this now at Platform One College where he is studying for a degree in Commercial Music.
Daniel has said:
“I’ve grown up knowing that I have Alpha 1 but in reality, my day to day life is pretty normal. My liver condition only really restricts me from drinking and smoking, which isn’t a bad thing. I’m still able to carry on with what I love which is the main thing. My hospital check- ups are now at Southampton General rather than Kings and I no longer have to take any medication.”
Daniel wishes to push on and do a Masters where he will focus more on producing music in a studio environment.
As well as studying, Daniel is in a band called Obscure Colours. A 4 piece band based on the sounds of late 80s alternative rock and psychedelia they have recently released their first single called ‘Zarmina’ which is getting some traction on Spotify. The also appeared at the Isle of Wight Festival last year and are hoping to play there more often.
Daniel has also said:
“My advice to other young people who have Alpha 1 would be keep healthy and listen to your doctors’ advice. You will come under peer pressure but don’t give into it. At the same time, don’t let your liver condition consume your life. Do what you love, be sensible and stick to it. And if you have any concerns there will always be people to help you out.”
