ISLAND TEEN WITH NEUROLOGICAL DISORDER TO TAKE ON 10 MILE CHALLENGE

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An Isle of Wight teenager – diagnosed with a rare and life-limiting condition – is set to take on a 10-mile challenge that will see her raise money for a children’s charity.

16-year-old Amelia and her family will be walking along the Red Squirrel Trails between Newport and Sandown, with Amelia being pushed in her wheelchair and undertaking a short walk once every half an hour or so.

Amelia was just 3-years-old when she was first diagnosed with her neurological condition, called MECP Duplication Syndrome, which has left her physically and mentally disabled. It’s thought that she was the second person worldwide to be diagnosed.

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She and her family hope to raise funds for the children’s charity, When You Wish Upon A Star, which helps children with life-limiting conditions achieve their dreams.

The walk is set to take place on either the 1st, 2nd or 3rd of May dependent on the weather, and Amelia’s family would love others to get involved too. They said:

“We would love for you to join us by completing your own 10 mile walk across that weekend and if so we would like to suggest a minimum of £10 for each walker if you can afford to do so, alternatively, if you don’t feel up for a walk but still wish to donate, please feel free to do so.

“To bring some extra fun to the proceedings, please join in with the red squirrel theme in some shape or form; we will leave it to your very active imaginations!”

You can donate to her JustGiving page here.

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