A former Isle of Wight firefighter, who dedicated 30 years of his life to protecting the public, is now seeking the help of others to adapt his home following a diagnosis of Motor Neurone Disease, which has had life-limiting implications.
In January 2017, Trevor Moyce was diagnosed with Motor Neurone Disease (MND) – a rare, degenerative disease that affects as little as 2 in 100,000 people and has no cure. The news came just months after Trevor retired from the Isle of Wight Fire and Rescue Service as Station Manager of Newport.
Trevor’s youngest children are only 9 and 11-years-old and he has remained incredibly strong for them, but a diagnosis of MND is impossible to fully accept and forever throws new hurdles for him to face. MND is also very unpredictable and can develop in any order and at any speed. Symptoms have developed rapidly for Trevor, who continues to deal with every stage so admirably.
In October 2017, Trevor’s life changed dramatically when his diaphragm had weakened so severely that he was taken to hospital in a medical emergency. He faced an extremely challenging time and has spent over 4 months in the Intensive Care Unit, including Christmas and his children’s birthdays. Trevor and his family fought to keep him going and this resulted in a ventilated tracheostomy being fitted. He now uses eye gaze* for his communication.
With the requirement of 24/7 nursing care, Trevor now tackles the next stage of life living with MND.
Family members are raising funds to build an extension to Trevor’s home in Wootton which would create an accessible bedroom and wet room. He now requires lots of equipment to help with his day to day needs – this medical equipment and his bed are currently in the living room. Raising £40,000 would allow Trevor to have access to a bathroom again and return the living space to him and his young family.
Islanders are being asked to support Trevor and his family in their hour of need by donating at https://www.justgiving.com/crowdfunding/trevormoyce. Over £4,000 has already been raised thanks to the generosity of the community.
MND affects the nerves in the brain and spinal cord that tell your muscles what to do and therefore restricts how you walk, talk, eat, drink and breathe. It affects up to 5,000 adults in the UK at any one time. You can find out more about MND and the MND association at www.mndassociation.org.
(*The Eyegaze Edge is an eye-operated communication and control system that empowers people with disabilities to communicate and interact with the world. By looking at control keys or cells displayed on a screen, a user can generate speech).