Most people don’t understand what cystic fibrosis is, or what it does, until someone close to them is affected by it. They soon discover it’s a life-shortening genetic condition – only half live to celebrate their 40th birthday. It causes the internal organs, especially the lungs and digestive system, to become clogged with thick sticky mucus, resulting in chronic infections and inflammation of the lungs.
Living with and managing cystic fibrosis is a constant battle. The condition affects everyone differently, but for many it involves a rigorous daily treatment regime including physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. Some people with cystic fibrosis will have a feeding tube overnight.
Here on the Isle of Wight, the song is receiving a lot of attention and is due to be aired at this weekend’s V-Dub Festival in Freshwater, where it will be added to the DJ playlist. In addition, Wightlink are set to play the official video (below) at their Ryde Pier Head and Portsmouth Harbour terminals and possibly on board the ships themselves.
Visit www.breathewithme.info download the song and read all about the project. You can also donate (as little as just £1.00) by clicking on the ‘Donate’ button on the site to show your support.
More information about the singer, Jo Brazier, can be found at http://www.annajo.co.uk.