A cheque has this week been presented to the Earl Mountbatten Hospice from the Sophie Rolf Fund, KissyPuppy, for the initial £10,000 raised up until March this year.
The Newport-based hospice will now use the money to help make arrangements to be able to provide accommodation for any child needing end-of-life care.
During May 2012, Sophie’s parents noticed a tremor in her left arm and after numerous hospital visits and finally an MRI scan in June, the family received the terrible news that Sophie has an aggressive brain tumour.
KissyPuppy was set up as a mechanism to fundraise for Sophie.
Speaking about the achievement, Sophie’s father Aaron said:
“For those of you reading this who are new to our appeal, Sophie is a beautiful, happy, larger than life little girl who, a few months before her fifth birthday, was diagnosed with an inoperable brain tumour. KissyPuppy would like to say an enormous thank you to everyone who has supported us through the life-changing 12 month period since her diagnosis in June 2012.
“Unfortunately the prognosis is still poor but what this devastating process has highlighted to us are the limited healthcare options available for children with life-shortening conditions on the Isle of Wight.”
The Chief Executive of the Earl Mountbatten Hospice, Tina Harris, added:
“The support we have received from KissyPuppy is helping us to develop services which are much needed by local families facing the challenge of bringing up children with a progressive life-shortening condition. There are currently around 50 families on the Isle of Wight who are directly affected every day, with up to 5 children dying on the Island each year from a life-shortening condition. Hospice-based palliative and end of life care is currently only available to support these families if they are able to travel to Winchester, and in most cases this has not been at all practical. We are committed to improving the range and availability of local services for Island children .”
Please share your experience of life-shortening conditions in children and young adults; contact Tina Harris, Chief Executive at Earl Mountbatten Hospice on 01983 529511 or [email protected] or throughwww.kissypuppy.co.uk.